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    •  
      CommentAuthorRed
    • CommentTimeNov 8th, 2018 12:20am (Nov 8th 2018) edited
     

    Keeper of the hens

    Photos of this little pro working around Tesco this evening!

    We had to squeeze past some things (like the trolley at the end of the aisle in the 1st pic) & Finley was great. Focus was on point too! :heart:
      IMG_20181107_213921_1-500x666.jpg
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    • CommentAuthornanny north
    • CommentTimeNov 10th, 2018 5:43pm (Nov 10th 2018)
     
    he is such a good little doggiexx
    •  
      CommentAuthorRed
    • CommentTimeNov 10th, 2018 10:29pm (Nov 10th 2018) edited
     

    Keeper of the hens

    He's the best NN, makes me smile even on the worst days (:

    My parents came up today & we enjoyed a gorgeous forest walk with Foobs. It wasn't as wheelchair accessible as I'd hoped, but we managed it :tooth:

    We also bought our first Christmas stuff for the pets today! A stocking for Finley & Derghan, a turkey toy for Finley, a flirt pole for Po & Derghan, & treats for the pups. My mum also got the pups an advent calendar to share :bigsmile:
      IMG_20181110_153100-500x666.jpg
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    • CommentAuthornanny north
    • CommentTimeNov 11th, 2018 2:57pm (Nov 11th 2018)
     
    I see he has his headlights on again trying to get an early peak at the Christmas goodies !!!! Glad you had a good time with your Mum and Dad. How is your Dads new Job going? Tell him we could do with an update its been so long since we last heard from him xx
    •  
      CommentAuthorRed
    • CommentTimeNov 13th, 2018 8:14pm (Nov 13th 2018) edited
     

    Keeper of the hens

    He's really enjoying the job NN, although it's not that new anymore haha. I don't know why he disappeared so badly XD

    Tonight Finley accompanied us to a restaurant & was a very good egg. Apparently the owner couldn't read as she sat next to us & wouldn't bugger off until she'd said hi to Finley (*sigh*) - but it was good practice, as Finley ignored her until being released to go say hi as a life reward (:
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    • CommentAuthornanny north
    • CommentTimeNov 22nd, 2018 5:53pm (Nov 22nd 2018)
     
    Sorry Red I didn't mean to put you on the spot so to speak but I am glad your Dad is ok and is happy with his new job. So good you are back with us, that means such a lot to us all as you are like family xxxx
    •  
      CommentAuthorKateb
    • CommentTimeNov 22nd, 2018 9:52pm (Nov 22nd 2018)
     
    I agree NN!!
    •  
      CommentAuthorRed
    • CommentTimeNov 22nd, 2018 11:35pm (Nov 22nd 2018) edited
     

    Keeper of the hens

    :heart:

    I've had really bad fatigue recently due to doing a walk daily for 5/6 days. Pees me off because I spend all the rest of my time in bed, but it's still too much for my body...so I run myself into the ground, then I get REALLY ill & end up stuck in bed. And as a result, my seizures & POTS have been abysmal too...I've had so many falls, blackouts & hours lost in fog it's scared Lyle, & also reminded both of us how bad it used to be before my chair!

    I've been completely bedbound 3 days but hoping I'll be well enough to manage a training outing tomorrow. I hate ME :001_rolleyes: However here's some Finley stuff from before I crashed. A video of an emergency alert button Finley is learning to push:

    https://youtu.be/3HEnKOXoukg

    It sends a text to Lyle saying I need help & gives him my exact location. Finley will be trained to push this automatically when I have a seizure (:

    And some working photos. He's training at Tesco & Aldi (first photo is an alert), & alerting whilst I'm sat in the shower!
      IMG_20181119_204110_114-500x625.jpg
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    • CommentAuthornanny north
    • CommentTimeNov 23rd, 2018 5:57pm (Nov 23rd 2018)
     
    Finley is amazing so glad you found each other xx
    •  
      CommentAuthorKateb
    • CommentTimeNov 24th, 2018 1:00pm (Nov 24th 2018)
     
    I love the pic of him peering around the shower curtain!
    •  
      CommentAuthorchief chicken
    • CommentTimeNov 24th, 2018 6:44pm (Nov 24th 2018)
     
    Perv...:face-devil-grin:
    •  
      CommentAuthorRed
    • CommentTimeNov 30th, 2018 1:36am (Nov 30th 2018) edited
     

    Keeper of the hens

    He's an angel - legitimately saved my life yesterday, that's the first time I'd been certain I wouldn't be here if he hadn't helped - lots of 'could have been really hurt' before though of course :tooth:

    I'm still stuck in bed doing absolute crud & looking like a zombie, sigh :rolling: My fatigue has been crisis level for about 5 days now, & today my blood pressure's been mega screwy, which gives me the same symptoms as when my heart rockets (seizures, spacing out, can't think, tremors, nausea, fever). I had a seizure sat on the side of the tub (which is how I wash my hands after the loo) & Lyle heard a bang, came running upstairs to find me seizing in the bathtub :rolling:

    The BP readings were all taken within 3 minutes :gasp: The first one I was lying down, 2nd I'd crawled to my wheelchair, & 3rd I was sitting down. And my heart rate upon standing, because that's crap too :tooth:
      IMG_20181129_094306-500x666.jpg
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    •  
      CommentAuthorRed
    • CommentTimeNov 30th, 2018 1:44am (Nov 30th 2018) edited
     

    Keeper of the hens

    After years of research I've finally started giving the pups a homemade diet! I can't handle raw so this is the next best thing. I have a 60/20/20 ratio; 60% meat (basa, mince, then raw - chicken, quail, mice etc), 20% fruit/veg, & 20% other (potato, oats, rice, yoghurt). Finley's loving it so far but I'm waiting to see if Kasper ends up at the vet next week before I switch him over, he's been a bit under the weather these last few days & I don't want him getting any poorlier with a dietry change.

    Oh & I bought the first of the pups Christmas gifts, including a gorgeous new collar for Foobs :heartsabove:
      IMG_20181125_194216_605-500x625.jpg
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    •  
      CommentAuthorchief chicken
    • CommentTimeNov 30th, 2018 8:10pm (Nov 30th 2018) edited
     
    Poor you, Red; do you call paramedics on occasions like that? I hope you feel better soon... :flowers:
    Interesting to hear about your dogs' dietary changes. My friend's dog has cancer and she's been to a homoeopathic vet who told her organic chicken and lamb only, no metal bowls, only eco washing powder on his bedding, plenty of veg...quite an eye opener. No Drontal was another thing. Can't remember all the advice, but quite amazed at the list. So you're wise to come of proprietary dogfoods, by the sound of it.
    • CommentAuthornanny north
    • CommentTimeNov 30th, 2018 8:31pm (Nov 30th 2018)
     
    So sad and sorry you not well again Red. All love and hugs coming your way xxxxxxx
    •  
      CommentAuthorDianeonWhidbey
    • CommentTimeDec 1st, 2018 6:13pm (Dec 1st 2018)
     
    After Holly became paralyzed for a month in 2011 for an unknown cause, I switched to homemade food. Basically what you are doing, Red, with the addition of some dulse (seaweed for iron) and hemp milk (don't know if they sell that there) which is high in calcium and has all 7 essential amino acids and other awesome things. Holly is almost 16 now.
    •  
      CommentAuthorRed
    • CommentTimeDec 2nd, 2018 11:04pm (Dec 2nd 2018) edited
     

    Keeper of the hens

    Posted By: chief chickenPoor you, Red; do you call paramedics on occasions like that? I hope you feel better soon...


    Nah CC, they'd only treat me like crap & accuse me of lying, plus if I went in everytime I felt terrible I'd be there 24/7 :rolling: It's better just to stay as still as I can, & try make the times when I do have to move as safe as possible...I'll hopefully be getting a stair lift from a council grant scheme next year though!

    We try & stay natural for the pups & kitties as much as possible...it's hard when you have no money, but I'm doing my best & they're all happy :smile:
    •  
      CommentAuthorRed
    • CommentTimeDec 2nd, 2018 11:06pm (Dec 2nd 2018) edited
     

    Keeper of the hens

    Posted By: nanny northSo sad and sorry you not well again Red. All love and hugs coming your way xxxxxxx


    Thanks NN! I've been at crisis level all last month (well, since the 11th!) so I've only been leaving bed a few times a week, then resting after the trips out to try let my body recover a little more each time...I'm so bored though, & I get so angry at my body when I'm still exhilarated & hurting :rolling:
    •  
      CommentAuthorRed
    • CommentTimeDec 2nd, 2018 11:11pm (Dec 2nd 2018) edited
     

    Keeper of the hens

    Posted By: DianeonWhidbeyAfter Holly became paralyzed for a month in 2011 for an unknown cause, I switched to homemade food. Basically what you are doing, Red, with the addition of some dulse (seaweed for iron) and hemp milk (don't know if they sell that there) which is high in calcium and has all 7 essential amino acids and other awesome things. Holly is almost 16 now.


    Wow 16 Diane!! And still such a beauty :heart:

    We add supplements to their food too, & powdered seaweed is one of them! They also get chamomile, lemon balm, turmeric, cod liver oil (although I can't afford more atm & we've run out!), grape seed extract, & Finley gets a joint pill as he's a growing boy :bigsmile: This is a meal example; they get their raw separate (:
      IMG_20181202_015156-500x666.jpg
    •  
      CommentAuthorRed
    • CommentTimeDec 2nd, 2018 11:14pm (Dec 2nd 2018) edited
     

    Keeper of the hens

    Both the boys had spa treatment the other day: a bath & a pawdicure! Kasper is a nightmare with baths, as he is with everything, but we have adjustments to at least make it manageable. A footstool to get into the tub in order for it to be his choice (as with most fearful dogs, he should never be forced to do something, he WILL bite...we gotta think outside few box!). & PB on the walls for him to lick off during!
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    •  
      CommentAuthorRed
    • CommentTimeDec 2nd, 2018 11:18pm (Dec 2nd 2018) edited
     

    Keeper of the hens

    And finally, my parents came up yesterday, so I enjoyed my day out this week. It was too much though...first 90mins I was able to be my usual self, bouncing about making people laugh, but then I just crashed HARD. I got to be out the house though, so. Finley came with us whilst we ate tea (in the noisiest pub ever!). Here he is being unbothered by the worst of drunks:

    https://youtu.be/aZo_rILr_q0

    After he came into Co-op with us. It was his first time in there :smile:
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    •  
      CommentAuthorRed
    • CommentTimeDec 2nd, 2018 11:23pm (Dec 2nd 2018) edited
     

    Keeper of the hens

    And here's Finley alerting during some recumbent cycling. This is the only exercise I can do that's not too harsh/dangerous on my body (160 heart rate, moderate symptoms). I try do this a few times a week for up to 5mins, & we use it as training for Finley's heart rate alert!!

    https://youtu.be/T5VfP83QlUs
    •  
      CommentAuthorRed
    • CommentTimeDec 4th, 2018 2:56am (Dec 4th 2018) edited
     

    Keeper of the hens

    Something awesome happened today in regards to me not being able to attend appts due to medical trauma. I copied this from my blog because I'm way too exhausted to type it out again:

    Appts now trigger crippling anxiety/panic weeks in advance, resulting missed sleep &, ultimately, bipolar episodes. Thanks to dozens of negligent doctors, medical appts are now dangerous to my health :rolling:

    Well, for the last few months my partner, Lyle, has been desperately hunting for a way to manage medical appts. Initially I was looking, but I found it too stressful as it meant I was thinking about the NHS 24/7, & I also found no solutions.

    After lots of dead ends, in desperation he rang PALS today. I say in desperation as we've had maybe half a dozen dealings with them; they've never been helpful & last time didn't even bother responding :rolling:

    BUT! We got incredibly lucky, & the woman Lyle spoke with today was beyond incredible.

    Lyle explained our predicament. Almost immediately the PALS member asked what my gender was, as she'd noted Lyle was using they/them pronouns. Considering most NHS staff I've dealt with aren't aware AT ALL of transgender issues, the fact she'd noted this & was then very familiar with nonbinary folk, was fantastic. She then went on to say (without Lyle asking) that she would put a note on the system that I was nonbinary, & that I may need support for this. She also said she'll help us formulate a plan to help us manage the constant misgendering from doctors, & a way to report them if they don't correct themselves.

    I was so happy I cried upon hearing this :smile:

    Next, she asked Lyle if I had ever been diagnosed with autism. Again, Lyle hadn't mentioned the fact that we (& my parents) are certain I'm autistic - she picked it up from Lyle's descriptions!!

    After listening to Lyle talk in more detail, she said that she will add a note on my file saying that it's highly expected I'm autistic, & that it would be preferred if we could have doctors experienced with ASD. She is also referring us to all the services I would have been directed to if I had a formal autism diagnosis - cue more happy, grateful tears from me :tooth:

    Finally, she said medical trauma is a complex issue, but she will help us access support & formulate a plan to cope, & be able to attend appts again!

    So...basically it was the best thing ever, & I'm actually feeling hopeful that I may be able to access diagnoses/treatment soon!!!
    •  
      CommentAuthorRed
    • CommentTimeDec 4th, 2018 2:58am (Dec 4th 2018)
     

    Keeper of the hens

    And here's Finley doing pressure on a painful ankle (yay for dislocating joins!):
      IMG_20181203_152313_603-700x525.jpg
    • CommentAuthornanny north
    • CommentTimeDec 4th, 2018 4:29pm (Dec 4th 2018)
     
    Yay wonderful news that's marvelous.xx
    •  
      CommentAuthorKateb
    • CommentTimeDec 4th, 2018 8:09pm (Dec 4th 2018)
     
    I wonder if Lyle happened to speak to the manager? It sounds like she has a lot of 'power' - able to put a suggested diagnosis on your record, refer you to services to help with autism etc. Unless you just got someone good at their job who's just done their gender awareness course (or has an alternative to the m/f gender themself). Whatever - you're getting some help at last. Long may it last!!
    •  
      CommentAuthorchief chicken
    • CommentTimeDec 5th, 2018 5:29pm (Dec 5th 2018)
     
    Absolutely. About time you had some proper help and some good news.
    •  
      CommentAuthorDianeonWhidbey
    • CommentTimeDec 5th, 2018 5:32pm (Dec 5th 2018)
     
    CC! We are on line at the same time!
    •  
      CommentAuthorchief chicken
    • CommentTimeDec 6th, 2018 7:36pm (Dec 6th 2018)
     
    And I was too dim to notice...:crying:
    •  
      CommentAuthorRed
    • CommentTimeDec 7th, 2018 12:31am (Dec 7th 2018) edited
     

    Keeper of the hens

    Thanks everyone!! Kate I have no idea if it was the manager or we just got incredibly lucky, but yaaay!!

    We heard back yesterday & they've sent info to my GP re autism, med trauma, & nonbinary. They told Lyle to get a phone appt with my GP & sort out a written agreement, which would dictate the GPs behaviour at appts. This would be stuff like dealing with Lyle where possible, not bringing up mental health when I'm there for physical conditions, ignoring Finley, & dimming the lights when possible.

    We're gonna be adding the surgery/pharmacy to our training routine, so that when I have my first appt, me and Finley are ready for it. This was his first trip there & he smashed it :bigsmile:
      IMG_20181206_190704_803-500x625.jpg
    •  
      CommentAuthorKateb
    • CommentTimeDec 7th, 2018 8:53pm (7 days ago)
     
    If possible keep a copy of the letter you send - its amazing how they suddenly can't find that they received it when you attend! Fingers crossed it helps.
    • CommentAuthornanny north
    • CommentTimeDec 9th, 2018 4:39pm (5 days ago)
     
    Good idea Kate