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    •  
      CommentAuthorRed
    • CommentTimeAug 28th, 2016 6:54pm (Aug 28th 2016)
     

    Keeper of the hens

    IT WENT SO WELL!!! :yay_jump:

    Everyone involved did SO WELL; Pixie was fantastic, my parents followed every instruction we gave them, and Lyle was there as back-up.

    I put Pixie in the pupoose as Lyle went out to quickly run over the 'rules'with my parents. We used the pupoose as it's the one way Pixie can walk past strangers and unknown dogs without barking, growling or becoming scared, she's more confident in the pupoose.

    We went out to the car park and I stood about 30ft from my parents as they got out the car. Lyle went and spoke with them and we collected our joint picnic bags and started walking. Pixie was entirely silent. I kept a good 15+ft from my parents as we walked, and they didn't interact or look to us at all (they did so good at this and it helped so much), and Pixie was able to glance over and have a quick look then turn away.

    We walked into the field and climbed the hill doing the same thing, and at the top everyone dumped their bags and sat down, and I sat about 10ft away from Lyle (with my parents on the other side of him) and let Pixie out the sling.

    We walked about for five minutes, she wanted to keep some distance from them so we moved away and she was able to walk, sniff, and calm herself. Then she was ready to start looking at them and moved closer when she wanted to. Any time she wanted to move away she could, and my parents were still ignoring her.

    After ten minutes I sat down again with Pixie attached to my walking belt, and she mooched about sniffing. We practised her coming to me when called and she got some picnic food, then I unhooked her and left her trailing a 12ft lead to go do what she wanted. She was very happy doing her own thing, and really wanted to investigate my parents closer. She sniffed my dad's head as he was lying down :rolling:

    I mooched about the field with Pixie a bit. She enjoyed having a sniff and went tearing about like a loon with me pretend-lunging at her. When we joined the picnickers again she was taking treats from my dad!! My parents again were amazing - my dad ducked his head so his face was hidden as Pixie approached for the treat, and my mum turned and kept her back to them :bigsmile:

    The picnic finished with Pixie running about like a loon again (she was EXHAUSTED by the end as she'd played with Rey just before we left!) and everyone laughing at her :smile:
    •  
      CommentAuthorKateb
    • CommentTimeAug 29th, 2016 3:58pm (Aug 29th 2016)
     
    It would look so funny to an outside observer who knows nothing about her!! Glad you all had a good day. xx
    •  
      CommentAuthorchief chicken
    • CommentTimeAug 30th, 2016 2:56pm (Aug 30th 2016)
     
    Yes, the onlooker thinking 'Look at those horrid people ignoring that lovely little dog...' :) She is an amazing little girl and you're doing wonders with her.
    •  
      CommentAuthorRed
    • CommentTimeAug 30th, 2016 9:47pm (Aug 30th 2016)
     

    Keeper of the hens

    Funny you should say that, we had a horrible woman today remark (LOUDLY!) as we walked past that she thinks 'people who don't let little dogs behave like dogs are abusive' - this comment was made alongside several dirty looks, all because we had Pixie in the pupoose as we were walking on narrow pavements where there were bound to be people, kids, dogs etc. All things that terrify Pixie, and that she can cope with from the safety of the pupoose. Don't you just hate people? :sarcastic:

    Could have said something but I had a killer of a migraine and was really sad because we found Tristan dead this morning, so just did not have the energy. I don't really think it's ever worth arguing with idiots anyway, most the time they won't listen.
    •  
      CommentAuthorchief chicken
    • CommentTimeAug 31st, 2016 4:27pm (Aug 31st 2016)
     
    So sorry about little Tristan...:heart: What a shock for you.
    Ignore that silly cow; she probably tuts at autistic kids in supermarkets and recommends a good thrashing - she sounds like that type. Not worth wasting breath on. Hope your migraine is better. :flowers:
    •  
      CommentAuthorRed
    • CommentTimeSep 1st, 2016 6:15am (Sep 1st 2016)
     

    Keeper of the hens

    It was awful CC :( Only back to Omri in bunny-land now and he's so independent and shy...I've lost Aubree and Tristan-bun who were both confident as anything :sad: Thank you. Shook off the migraine now, seem to have ear ache from it if that's even possible :tooth:
    •  
      CommentAuthorKateb
    • CommentTimeSep 1st, 2016 11:08pm (Sep 1st 2016)
     
    Oh no! I'm so sorry - do you think he's had a fall or is it just a sudden and unexplained death? Rabbits are more frail than we realise sometimes. Poor Tristan - the dogs will miss him too I'm sure. :face-crying:

    As for people in the street passing comment, just ignore them. We all make snap assessments of a situation and it's frequently wrong. And yes, she's wrong to make loud comments about it but like CC said, she'll be the sort that will make sure everyone hears what she has to say - she has an opinion and we're all entitled to it. It's not worth having a stand up row - it will just make you feel stressed and upset, and even more important frighten Pixie. You did the right thing. xx
    •  
      CommentAuthorRed
    • CommentTimeSep 3rd, 2016 10:58pm (Sep 3rd 2016)
     

    Keeper of the hens

    There was nothing he could have fallen off Kate, we really have no idea what could have happened. I checked his body all over and there was no signs of anything :sad: Thank you :bighug:

    Everyone tried some raw fish today. Hoping to get Fabian on a raw diet, the cats mostly raw, and the dogs kibble-and-raw mix diet!! Here's Fabian:





    •  
      CommentAuthorKateb
    • CommentTimeSep 4th, 2016 5:49pm (Sep 4th 2016)
     
    Love his name - Fabian the Ferret!

    You'd posted a pic of him climbing the cage bars and I thought maybe he could've fallen and landed oddly. It's hard when they die with no obvious cause.
    :face-crying:
    •  
      CommentAuthorRed
    • CommentTimeSep 4th, 2016 10:34pm (Sep 4th 2016)
     

    Keeper of the hens

    Oh I hadn't thought of that :( It's weird without him, Pixie still goes sniffing up to his crate looking for him, and even though it's cleaned out and open now she won't go in.

    Photos from a walk today around the flooded fields. My parents couldn't believe how flooded it is around here, apparently it's not at all there. Totally means more floods and blackouts this winter >__<



    •  
      CommentAuthorRed
    • CommentTimeSep 7th, 2016 6:51pm (Sep 7th 2016)
     

    Keeper of the hens

    Went on a two hour walk today which was a huge mistake as it was so SO hot, and of course I only brought water for the dog :rolling: Still it was lovely in the shade and Pixie's first experience of a forest! Dog-free pics:











    •  
      CommentAuthorKateb
    • CommentTimeSep 7th, 2016 9:22pm (Sep 7th 2016)
     
    Yes, the dog really wouldn't want to share water with you would she - always the backwash worry!!!
    •  
      CommentAuthorRed
    • CommentTimeSep 7th, 2016 10:01pm (Sep 7th 2016)
     

    Keeper of the hens

    :rolling: Oh yeah, because her and Raiden definitely don't try and stick their tongues in my mouth at every opportunity!!!
    •  
      CommentAuthorKateb
    • CommentTimeSep 8th, 2016 10:30pm (Sep 8th 2016)
     
    Hee Hee!! Don't you just love dogs!!!
    •  
      CommentAuthorRed
    • CommentTimeSep 10th, 2016 9:33pm (Sep 10th 2016)
     

    Keeper of the hens

    Have a new baby today. We adopted a 6 month old Continental Giant cross. He's huuuuuuge!! Omri is average size and the new bun is easily twice as big :smile:

    Pixie was scared of the rabbits for a long time before becoming friends with Tristan, but with Brawn (new bun) being so big she's terrified of him haha! Keeps going to sniff near the cage, then Brawn moves and she scatters away, sometimes huffing :rolling:



    •  
      CommentAuthorchief chicken
    • CommentTimeSep 11th, 2016 4:20pm (Sep 11th 2016)
     
    Gorgeous! How big is he (in yards...)? You two WILL end up in the shed! :rolling:
    •  
      CommentAuthorRed
    • CommentTimeSep 11th, 2016 6:31pm (Sep 11th 2016)
     

    Keeper of the hens

    Omri is an average sized bunny boy, and Brawn is twice as big as him. He's about the same size as Pixie (she weighs 5.2kg) and he's a bit bigger than both the cats :smile:

    AAAAAAAAAAAAAAAAAAAAAAAAAAAAyyyyyyyyhjgyyg,.. (thanks for the message Enzo...)
    •  
      CommentAuthorKateb
    • CommentTimeSep 11th, 2016 6:58pm (Sep 11th 2016)
     
    And I assume he's going to get bigger if he's only 6 months? He's very sweet. What does Omri think of him?
    • CommentAuthorLynnW
    • CommentTimeSep 11th, 2016 11:47pm (Sep 11th 2016)
     
    Red, I'm so sorry to hear about poor little Tristan. You know bunnies can die of fright too, I had a house bunny that died after hearing the big booms from the guns out at the Army base that we live by. You can actually scare them to death.

    Your new big bunny is huge!!(and a real cutie.
    •  
      CommentAuthorchief chicken
    • CommentTimeSep 12th, 2016 4:38pm (Sep 12th 2016)
     
    Wow, Enzo speaks Mexican!
    •  
      CommentAuthorRed
    • CommentTimeSep 12th, 2016 11:20pm (Sep 12th 2016)
     

    Keeper of the hens

    Kate he could get quite a bit bigger, or he could be fully grown now...bunnies seem to vary a lot, but if it's anything like dogs bigger ones keep growing for longer :bigsmile:

    Lynn we had a bunny die of fright but I can't image Tristan would because he was just so confident, and as he was indoors there weren't very many loud noises or unexpected noises...Pixie barked, but Tristan passed overnight and he was very used to her little woofing :sad: Thanks!

    CC I am constantly having to explain to people that my cat typed that and apologise :rolling:
    •  
      CommentAuthorRed
    • CommentTimeSep 14th, 2016 5:29am (Sep 14th 2016)
     

    Keeper of the hens

    Brawn is such an easy bunny to own, although my god are his binkies LOUD!!! :rolling: I got a photo of his back paw next to my pointing finger...he's a BIG boy



    Brawn was out roaming the room for eight hours today because he's just so easy - litter trained himself, didn't do a single poop around the room, didn't chew anything 'naughty'...met the cats for the first time today and was just awesome (Pecan was very suspicious of Brawn :rofl: ).



    •  
      CommentAuthorKateb
    • CommentTimeSep 14th, 2016 6:47pm (Sep 14th 2016)
     
    It's lovely to see such harmony among all the animals. Brawn is cute, but the look on Pecan's face is a picture! (And what a beautiful cat he's growing into!)
    •  
      CommentAuthorRed
    • CommentTimeSep 15th, 2016 3:43pm (Sep 15th 2016)
     

    Keeper of the hens

    Pecan was really suspicious hahaha! He's suh a sweetie though that een when Brawn went up to Pecan and Pean got scared, he wouldn't hiss or hit hi like Eno but would just flee!

    (ugh, this keyboard man......)
    •  
      CommentAuthorKateb
    • CommentTimeSep 15th, 2016 9:59pm (Sep 15th 2016)
     
    Your keyboard is making me laugh!! Your typing is usually so perfect ... weird thing is I can still read it easily!
    •  
      CommentAuthorRed
    • CommentTimeSep 15th, 2016 11:13pm (Sep 15th 2016) edited
     

    Keeper of the hens

    Hahahaha!! I have OCD tendencies and one of the many ways that manifests is I have to check and hek and rehek and hek repeatedly that what I have written online makes sense and there are no spelling mistakes...so for weeks I've been spending a good thirty minutes on posts making sure there are no mistakes or missing letters (normally I rehek posts at least a dozen times), and posts on y blog are taking hours...so sick of it I've mostly given up now but I don't feel good about leaving it like this AT ALL!!!
    •  
      CommentAuthorRed
    • CommentTimeSep 17th, 2016 7:41pm (Sep 17th 2016)
     

    Keeper of the hens

    Dog-free photos from our awesome 3+ hour adventure yesterday ^__^















    •  
      CommentAuthorKateb
    • CommentTimeSep 18th, 2016 10:30pm (Sep 18th 2016)
     
    LOVE the third one down - fluffy white clouds, blue sky, dark ground. Excellent.
    •  
      CommentAuthorRed
    • CommentTimeSep 20th, 2016 6:56am (Sep 20th 2016)
     

    Keeper of the hens

    Dog-free pics from yesterday's walk...





























    We're going on lots of adventures atm to train Pixie :)
    •  
      CommentAuthorRed
    • CommentTimeSep 20th, 2016 1:32pm (Sep 20th 2016) edited
     

    Keeper of the hens

    Just to bombard you with even more pics!!

    I'm getting a custom pet portrait of the two little 'uns for my birthday, as we only have one of Kasper and Zoey, and the artist who we bought it from is outstanding. She sent lots of updates of the work in progress and it's so fascinating to watch it progress. Here it is beginning to end :smile:

    I've not seen it in person yet as my birthday's almost a month away, but I'm so excited! I love love love that she captured their sweet faces, and featured Pixie's wonky legs :rolling:
      bdayexcitementfirst.jpg
      bdayexcitement.jpg
      bdayexcitement2.jpg
    •  
      CommentAuthorchief chicken
    • CommentTimeSep 21st, 2016 3:20pm (Sep 21st 2016)
     
    They're not wonky legs, they're cabriole legs. Or they would be if she were a chair...
    Red, you should join the local camera club - you'd walk the competitions!
    •  
      CommentAuthorKateb
    • CommentTimeSep 21st, 2016 7:36pm (Sep 21st 2016)
     
    4th pic - looking up through the tree - is my fave this time. CC is right - you have such a great eye. Always loved to see NNs pics too, she could always pick a good angle.
    •  
      CommentAuthorRed
    • CommentTimeSep 22nd, 2016 10:12am (Sep 22nd 2016)
     

    Keeper of the hens

    Haha thanks both, I do love my photography :D
    •  
      CommentAuthorRed
    • CommentTimeSep 24th, 2016 8:33pm (Sep 24th 2016) edited
     

    Keeper of the hens

    *~*~*~* snake alert *~*~*~*

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    Thought I'd post a pic of Satsu now he's getting bigger!



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    • CommentAuthorLynnW
    • CommentTimeSep 26th, 2016 7:32pm (Sep 26th 2016)
     
    Red, your pictures are so beautiful..the only one that wasn't so pretty was the black and white of garbage left behind in the stream bed..LOL oh, and thank you for warning before the pic of Satsu.:face-smile:
    •  
      CommentAuthorRed
    • CommentTimeSep 26th, 2016 10:58pm (Sep 26th 2016)
     

    Keeper of the hens

    Thank you! The photo with the dumped rubbish is a popular spot for dropping off all kinds of crap - it's in the middle of nowhere and there's a farm and caravan site nearby that I suspect of dumping the rubbish there.
    •  
      CommentAuthorRed
    • CommentTimeMay 3rd, 2018 1:40pm (May 3rd 2018) edited
     

    Keeper of the hens

    Flowers!
      IMG_20180502_155710_194.jpg
      IMG_20180502_155710_195.jpg
      IMG_20180501_000740_163.jpg
      IMG_20180427_171048_182.jpg
      IMG_20180502_155710_198.jpg
    • CommentAuthornanny north
    • CommentTimeMay 3rd, 2018 4:40pm (May 3rd 2018)
     
    Beautiful photos Red so nice to see something different from my own. xx
    •  
      CommentAuthorchief chicken
    • CommentTimeMay 3rd, 2018 6:03pm (May 3rd 2018)
     
    They are lovely, Red; are they proper camera or phone camera? I'm constantly amazed at the quality of phone cameras.
    • CommentAuthorLynnW
    • CommentTimeMay 3rd, 2018 9:35pm (May 3rd 2018)
     
    Your pictures are beautiful, Red!:face-smile:
    •  
      CommentAuthorRed
    • CommentTimeMay 6th, 2018 1:03am (May 6th 2018) edited
     

    Keeper of the hens

    Thank you everybody :flowers: :heart: CC it's my camera phone! It takes amazing photos when it's sunny :bigsmile:

    Had an awful walk tonight, but it was worth it for these photos! ;)
      IMG_20180505_214845_512.jpg
      IMG_20180505_214845_518.jpg
      IMG_20180505_214845_509.jpg
      IMG_20180505_214845_519.jpg
    •  
      CommentAuthorchief chicken
    • CommentTimeMay 6th, 2018 12:49pm (May 6th 2018) edited
     
    You have an excellent eye for a picture Red; I'm sure they would sell as cards. I'd buy 'em!
    •  
      CommentAuthorRed
    • CommentTimeMay 6th, 2018 2:48pm (May 6th 2018)
     

    Keeper of the hens

    Thank you CC! :heart: :face-angel:
    • CommentAuthornanny north
    • CommentTimeMay 6th, 2018 8:01pm (May 6th 2018)
     
    Beautiful I love the long shadows onexx
    •  
      CommentAuthorRed
    • CommentTimeMay 7th, 2018 1:56pm (May 7th 2018)
     

    Keeper of the hens

    Thanks NN!! Loving this gorgeous weather haha, only problem is there are midgies EVERYWHERE - in two walks I gathered up over 50 bites!! :rolling:
    •  
      CommentAuthorRed
    • CommentTimeMay 7th, 2018 2:16pm (May 7th 2018)
     

    Keeper of the hens

    Me and the littlest :bigsmile: Coming up to her amputation anniversary in a few weeks! We've named it her Leggiversary, & will be baking her a leg shaped cake :rolling:
      IMG_20180507_125742_125.jpg
    •  
      CommentAuthorchief chicken
    • CommentTimeMay 7th, 2018 6:23pm (May 7th 2018)
     
    Bless her. she's gorgeous!
    •  
      CommentAuthorKateb
    • CommentTimeMay 7th, 2018 8:07pm (May 7th 2018)
     
    It's lovely to see a pic of her (and you!) Red. Has it only been a year since her leg was amputated? It seems such a long time ago now. She looks very happy - does she cope well on 3 legs?
    • CommentAuthornanny north
    • CommentTimeMay 8th, 2018 9:35am (May 8th 2018)
     
    Such a lovely surprise to see a picture of you and your beautiful smile Red.xxxx Little doggy looks so happy and enjoying a nice cuddle xx
    • CommentAuthorLynnW
    • CommentTimeMay 10th, 2018 7:23am (May 10th 2018)
     
    Love the picture of you and your Pup, Red.:face-smile:
    •  
      CommentAuthorRed
    • CommentTimeMay 12th, 2018 9:43pm (May 12th 2018)
     

    Keeper of the hens

    Awww thank you so much all! :heart: It does feel longer doesn't it Kate?! NN she loves cuddles so much, & is always asking to be picked up!!
    •  
      CommentAuthorRed
    • CommentTimeMay 12th, 2018 9:45pm (May 12th 2018) edited
     

    Keeper of the hens

    Today I had my first proper day out in months & months, I was out about 2-3 hours!! It went okay, but I 'survived' it rather than being able to enjoy it, due to my symptoms...it was still nice to be out in the sun though, it was just a battle...I had to lie down a lot, sit and rest in my walker, & was in so much pain when we got back home :fierce:

    We went to a castle with Lyle's parents, it was such a beautiful place...I'm looking forward to going back with a wheelchair so I can enjoy it properly :smile:, but here are some photos I took!
      IMG_20180512_150915_694.jpg
      IMG_20180512_150915_696.jpg
      IMG_20180512_171859_190.jpg
      IMG_20180512_150915_697.jpg
      IMG_20180512_150915_700.jpg
    •  
      CommentAuthorchief chicken
    • CommentTimeMay 13th, 2018 7:18pm (May 13th 2018)
     
    What an amazing place; and how lovely you had a 'good' day there. I hope this is the first of many more days out now that you have your chariot!:face-smile:
    • CommentAuthornanny north
    • CommentTimeMay 13th, 2018 8:27pm (May 13th 2018)
     
    So glad you had such a good day out despite every thing Red Tat looks like a real nice castle where is it please xx
    •  
      CommentAuthorKateb
    • CommentTimeMay 14th, 2018 9:51pm (May 14th 2018)
     
    Love the pic of Lyle holding up the castle!!!!!
    • CommentAuthorLynnW
    • CommentTimeMay 16th, 2018 6:39pm (May 16th 2018)
     
    The last picture of the garden is so beautiful, Red..all the pics are great, but the garden is awesome!:face-smile:
    •  
      CommentAuthorRed
    • CommentTimeMay 25th, 2018 11:22am (May 25th 2018) edited
     

    Keeper of the hens

    Thanks all! :heart:

    The other day we went to the zoo with my parents, to celebrate Lyle's birthday! We had the best time ever! It was the first time me & Lyle had been out for so long and really gone anywhere so big in such a long time!

    Lovely to see all the animals, and the best bit? The lemurs LOVED my wheelchair!!! They were all climbing it and sitting on my lap, it was AMAZING :bigsmile:
      IMG_20180520_153211-720x1280.jpg
      IMG_20180520_193606_728.jpg
      IMG_20180520_195946_488.jpg
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      IMG_20180520_153402-1280x720.jpg
    • CommentAuthornanny north
    • CommentTimeMay 25th, 2018 2:15pm (May 25th 2018)
     
    Wonderful pictures ans so good to see you looking so care free and happy. I love Lyles cake. In the last picture it looks like the Lemur at the back is pushing you Ha ha Brilliant so happy for you xxx
    •  
      CommentAuthorKateb
    • CommentTimeMay 25th, 2018 6:15pm (May 25th 2018)
     
    It does NN! And the other looks like he's reading your messages! Lovely animals and you're looking really well Red! Happy birthday Lyle!!
    •  
      CommentAuthorchief chicken
    • CommentTimeMay 25th, 2018 6:19pm (May 25th 2018)
     
    Did they tickle when they were on you? Happy birthday, Lyle!:bdayparty::bdayhappy_balloons::bdaycake:
    • CommentAuthorLynnW
    • CommentTimeMay 26th, 2018 4:11am (May 26th 2018)
     
    Red, I love the pictures of you and the Lemurs!!! HAPPY BIRTHDAY LYLE
    :bdayparty::bdayhappy_balloons::bdaycake:
    •  
      CommentAuthorDianeonWhidbey
    • CommentTimeMay 27th, 2018 4:51pm (May 27th 2018)
     
    Those pictures with the lemurs are AWESOME. What a fantastic experience.

    HAPPY BIRTHDAY, Lyle !!!!
    •  
      CommentAuthorRed
    • CommentTimeJun 14th, 2018 8:32pm (Jun 14th 2018) edited
     

    Keeper of the hens

    Hahaha NN I totally didn't 'see' it like that, but it really does look like the lemur is pushing the chair :rolling:

    Thanks for the birthday wishes all, he had a good one :heart:

    We had two benefits finally admit they were in the wrong, & combined they back paid us 18 months worth of money. We've gone from having no income and not being able to afford food, to suddenly having money & being able to re-start our vet & emergency funds.

    The 'big' thing I bought was a £229 wheelchair. Holy moly, the difference between this and my last is incredible. Allow me to be boring for a sec as its so exciting to me haha!!

    So this chair weighs just 7kg, which is half the weight of the other. This means I can self propel myself MUCH easier & Lyle can push me even up hills with ease! The seat is also much higher compared to the wheels, & the wheels are much further forwards - again this helps with pushing myself, & requires less effort. It also means I can push with my arms in a more natural position (I'll post photos of the difference to my arms). With my last chair my elbows & shoulders were constantly subluxing (yay hypermobility), so this is much nicer! As well as wheeling like a dream it's super easy to tip over curbs & up steps, whereas with my last chair I had to hop in and out which obviously wasn't great for my heart! Oh, and it just looks awesome too :heartsabove:

    My new one's the silver (:
      IMG_20180613_123830-1488x1984.jpg
      IMG_20180613_123856-1488x1984-1116x1488.jpg
      IMG_20180614_203332-540x382.png
      IMG_20180614_203749.png
    •  
      CommentAuthorRed
    • CommentTimeJun 14th, 2018 9:02pm (Jun 14th 2018) edited
     

    Keeper of the hens

    Because Zip is cute ;) This was during their out of cage time.
      IMG_20180614_210059-540x397.png
      IMG_20180614_210043-540x403.png
    • CommentAuthornanny north
    • CommentTimeJun 15th, 2018 10:20am (Jun 15th 2018)
     
    Hey there Red happy to see you, Ive not read your other posts yet but you sound so much more relaxed and happy from this one.... Those little birds are just the cutest ever Im hoping your wrote more about them else where xx. Yes that's an awesome chair and certainly money well spent so very happy things have taken a turn for the better for you both xxxxx
    •  
      CommentAuthorchief chicken
    • CommentTimeJun 15th, 2018 5:43pm (Jun 15th 2018)
     
    Very flash chair - looks as though it should go 100mph! How did the heart monitor results go down with the GP - can she prescribe anything to help you?
    •  
      CommentAuthorRed
    • CommentTimeJun 16th, 2018 5:44pm (Jun 16th 2018) edited
     

    Keeper of the hens

    I'm doing muuuch better NN! It's so nice to just be able to leave the house without worrying about having back-to-back seizures/my safety...makes a huge difference in how you view life, & I'm really enjoying being able to do more :bigsmile:

    Posted By: chief chickenVery flash chair - looks as though it should go 100mph! How did the heart monitor results go down with the GP - can she prescribe anything to help you?


    Sometimes I feel like I'm going that fast - funny to look over my shoulder & see Lyle way behind :rolling:

    CC there's no 'cure' / treatment that has been at all effective in studies at reducing POTS symptoms...it's more you learn to manage your symptoms as safely as possible, and try things that help how you feel overall. There are things that can help slightly reduce symptoms in some people, like increased salt & fluids (I'm happy, I love salt :rolling: ) - I know several potsies who have found twice weekly saline IVs to be helpful with their chronic pain & lowering pre-syncope intensity, but they're very hard to get through the NHS. It's still a huge positive to know why I feel so crappy, how to manage it a bit better, & it lead us to a wheelchair which has been great (:

    I'm waiting on two referrals currently, one for a 24hr ECG & the other a 24hr EEG...my 20 minute EEG came back with slight abnormalities, that often happens with healthy brains too so I don't think it's indicative of epileptic seizures, but my neuro wanted to get me checked for Lupus/autoimmune epilepsy just in case. I was SO HAPPY he took it seriously, both neurologists have been great. He doesn't know that I have POTS yet though, as my EEG was last January & I was only diagnosed with POTS a few weeks ago, so at some point we need to try make him aware of that so he can factor that into my seizures :tooth:
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      CommentAuthorRed
    • CommentTimeJun 16th, 2018 5:56pm (Jun 16th 2018) edited
     

    Keeper of the hens

    I am IN LOVE with this new paracord I got. I used all 100ft of it immediately & created a 7ft multifunction lead...totally worth it, it's gorgeous! :heartsabove:
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      CommentAuthorchief chicken
    • CommentTimeJun 17th, 2018 4:01pm (Jun 17th 2018)
     
    Beautiful colours on that latest lead, Red. Did it take long for you to learn...whatever it is - knotting? Looks like a huge variation on those friendship bracelets that people make. Will you keep it for your own use or sell it? Perhaps Lyle can lash it to the chariot and make you roll to heel...:face-devil-grin:
    • CommentAuthornanny north
    • CommentTimeJun 17th, 2018 9:09pm (Jun 17th 2018)
     
    Ha ha ha you do make me laugh CC you do think up some crackers. That lead is totally awesome so even and the colours really pop.
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      CommentAuthorKateb
    • CommentTimeJun 18th, 2018 6:14pm (Jun 18th 2018)
     
    I'm so glad you've finally got a diagnosis Red, and that the benefits agency have admitted their mistake and given you back pay!! Result! The chair is fabulous - amazing the difference in what you get. It's a shame your diagnosis didn't lead to it being provided rather than you having to purchase it, but it has obviously had a tremendous effect on your mental health. Fingers crossed for the other tests - make sure you let us know when you get the results. Xxx
    • CommentAuthorollie in UK
    • CommentTimeJun 19th, 2018 4:01pm (Jun 19th 2018)
     
    I've been told that I need both knees replacing but surgery not advised due to other medical probs and my age (83 now).
    I have a wheelchair but someone has to push it.
    I really do like that one you have Red!
    Flashy looking and hand driven. Very desirable, I need to start saving... Though it's not very expensive as wheelchairs go.
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      CommentAuthorchief chicken
    • CommentTimeJun 19th, 2018 5:09pm (Jun 19th 2018)
     
    I thought the same, Ollie; it looked like good value. Sorry to hear about your problems though, Ollie. You need to find someone who can fit a V8 engine to yours until you can get a Redmobile. Hope your knees aren't too horribly painful. Do you take glucosamine and green lipped mussel and all the other joint -related herbal/alternative medicines?
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      CommentAuthorRed
    • CommentTimeJun 19th, 2018 6:21pm (Jun 19th 2018) edited
     

    Keeper of the hens

    CC it's really easy to pick up. I struggled because when my HR got too high I'd get hit with brain fog & forget the rhythm I'd learned, I had to undo quite a few of my first attempts haha...but now even when I'm feeling a bit spacey I can do it automatically, & the 7ft leads only take about an hour total. I use the cobra weave & it's really simple!

    I just keep them haha. I've had a few people ask if I'm selling, but I'm much happier making them when I feel like it & designing them to fit me! I created a new design the other day, a 2ft short lead that fastens with a buckle around my wrist. I needed something so that I don't have to keep hold / manage the length of a lead as I'm self propelling my wheelchair, and this works perfectly!

    And below that is another multifunction lead, this time in purple (:
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      CommentAuthorRed
    • CommentTimeJun 19th, 2018 6:32pm (Jun 19th 2018)
     

    Keeper of the hens

    Thanks NN! (:

    Thanks Kate! Yeah I did consider trying to fight to have a chair provided, but I'm so tired of fighting for help & I wanted to be able to choose a design that suited me, so we just went for it. The joy of having money :bigsmile: Thanks, and I will do! I know there's quite a wait for the EEG but hoping to get the ECG within the next few months, fingers crossed!

    Yes it seems really good value for what it is Ollie, highly recommended from us here! Sorry to hear about your issues, it's so bloody annoying that mobility aids are so ridiculously expensive...I don't suppose you can get powered chairs through the NHS? :/
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      CommentAuthorRed
    • CommentTimeJun 19th, 2018 6:41pm (Jun 19th 2018) edited
     

    Keeper of the hens

    The birds are truly settled in now! Zip is becoming my best little bud, he lands on me at play time & is constantly hopping across to me and pootling up my arm...loves trying to eat my phone :tooth: Roll isn't fearful, but she isn't as brave with her affection or as curious as Zip. They both love play time & their training sessions :laugh: They have no fear walking on the ground as I wheel my chair about either...they do move out the way though, so I don't have to worry too much about squishing them :rolling:
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      CommentAuthorKateb
    • CommentTimeJun 19th, 2018 7:37pm (Jun 19th 2018)
     
    Sorry about your knees NN, must be very difficult for someone as active as yourself to have issues with your knees. Have you been to see a physio to see if they can suggest any exercises to help or to get you a referral for a chair? I don't know what the criteria is - I'll try and find out what it is for this area. I understand why you didn't want to wait Red - I think the NHS and Social Care rely on people just sorting themselves out!

    You should try putting some of your leads on Etsy or Folksy or whatever the thing is now! If you've designed it to help you out there could be other people with similar issues that would love something like that. Even if you only sell one or two a month it's good 'rehab' against boredom and means you can purchase more cord to make more leads!
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      CommentAuthorchief chicken
    • CommentTimeJun 20th, 2018 1:42pm (Jun 20th 2018)
     
    Definitely. Although Folksy is not letting me buy things at the moment...fed up with it. But Kate's right, Red; you could finance your cord purchasing through selling a couple of leads. I see your point as well though; there's a pressure aspect to doing a commission that isn't there when doing something for yourself.
    • CommentAuthornanny north
    • CommentTimeJun 20th, 2018 1:47pm (Jun 20th 2018)
     
    Not my knees Kate but poor Ollies, sorry to hear about you being poorly Ollie but so good to have a post from you.


    The birdies look brilliant Red such cheerful little buddies for you to enjoy its lovely they have taken to you so quickly and make themselves at home with no problems.
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      CommentAuthorKateb
    • CommentTimeJun 21st, 2018 10:11pm (Jun 21st 2018)
     
    So it is NN! Sorry! Knee pain is miserable, I'm sorry they can't operate. It makes a big difference but I suppose there's no point if the rehab is going to be particularly difficult or other health issues make it too risky.
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      CommentAuthorchief chicken
    • CommentTimeJun 22nd, 2018 6:07pm (Jun 22nd 2018)
     
    But I hope you're getting adequate pain relief, Ollie.:heart: I know from what a friend says that Kate is right and knee pain is horrible.
    • CommentAuthorollie in UK
    • CommentTimeJun 26th, 2018 10:52pm (Jun 26th 2018)
     
    The pain of knees isn't over helming in any way.
    I'm told I have a very high pain threshold and find that for now just paracetamol helps enough.
    Have a new physio who takes a more holistic view and helps me more.

    Also discovered that the advice to take thyroid medication "with a large glass of water." Is not just a routine advice but the tab needs to be washed well into my system so it gets washed far enough down to be effective in the correct part of colon.
    After a few days of this have found I have more energy...
    Hope this is a real effect and not just an odd day of activity.
    • CommentAuthornanny north
    • CommentTimeJun 27th, 2018 8:57pm (Jun 27th 2018)
     
    That's real good advice about the Thyroid medication Ollie so happy you have more energy This heat has really got to me last couple of days also the stress of the coroners court hasn't helped, Its been so sad and upsetting. Time to move on now though so got hook out and sat under the gazebo and got started on a lupo no just couldn't get into it so back to start and got knitting needles out and successfully started a baby blanket.... someone is bound to want one sometime !!! To hot to paint during the day so just got in from doing half an hour while its cooler.
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      CommentAuthorRed
    • CommentTimeJun 28th, 2018 5:12pm (Jun 28th 2018) edited
     

    Keeper of the hens

    Dropping off a few photos of the birbs doing birb things :bigsmile:
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      CommentAuthorRed
    • CommentTimeJun 28th, 2018 5:55pm (Jun 28th 2018) edited
     

    Keeper of the hens

    Caught this fantastic sunset recently!
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    • CommentAuthornanny north
    • CommentTimeJun 28th, 2018 6:48pm (Jun 28th 2018)
     
    beautiful pictures xx
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      CommentAuthorchief chicken
    • CommentTimeJun 28th, 2018 7:34pm (Jun 28th 2018)
     
    Fabulous. Get turning them into postcards!:face-smile:
    • CommentAuthorLynnW
    • CommentTimeJul 1st, 2018 12:50am (Jul 1st 2018)
     
    Beautiful picture, Red!!!!!!!!!!!!!!!!
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      CommentAuthorRed
    • CommentTimeJul 3rd, 2018 7:50pm (Jul 3rd 2018) edited
     

    Keeper of the hens

    Thanks everybody!! :heart: :heartsabove:

    Just to show how POTS affects every part of my autonomic nervous system, this is how badly a simple trip to the loo effects me!! This involved standing, going upstairs, resting on the side of the tub, then coming back downstairs...both my blood pressure & heart rate going crazy!!! Both increased heart rate & sudden changes in blood pressure triggers my seizures. My usual heart rate is about 70 (HR is the smaller bottom number), my usual blood pressure is 110/75...it's actually really nice to know WHY I feel crappy, even if there is no cure. All those years of being told it's just in my head!!
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      CommentAuthorKateb
    • CommentTimeJul 3rd, 2018 10:56pm (Jul 3rd 2018)
     
    I can understand what a relief it must be to know what's causing it Red - there's nothing worse than not being believed, or everyone looking at you like you're making it up. Is there anyway to control the effects of POTS? Any drugs that can improve it? I suppose they can't as it fluctuates so rapidly. Drugs to slow or speed the heart, drop or raise BP, heard of all of them. Don't know how they could control it. Is it left to you to find a way to cope? Are there any support groups?
    • CommentAuthornanny north
    • CommentTimeJul 4th, 2018 8:46am (Jul 4th 2018)
     
    Goodness me Red that's awful I hope they find a way to help you cope real soon xxx
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      CommentAuthorRed
    • CommentTimeJul 4th, 2018 2:18pm (Jul 4th 2018) edited
     

    Keeper of the hens

    Thanks Kate! Before I bought my own heart rate monitor in, EVERY GP I saw immediately blamed my mental health because I'm diagnosed with bipolar disorder. The entire time I was trying to get help for my seizures, not one GP could accept they were anything other than mental health related. I now have such fear of going to the Dr, because most appts over the last few years have left me in tears or pulling my hair out in frustration, depending on if the GP was rude, threatening, or just plain ignorant. It makes me so angry!! There's no way to treat POTS, although some cardiologists try meds off label even though none have been proved effective in studies...there are a lot of support groups & the 'spoonie' community on instagram is great, I've made a lot of friends with the same conditions as me & we share stories, tips, support etc (:

    Thanks NN! It's got significantly better since I got my wheelchair, I'm just grateful to be able to leave the house :001_smile:
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      CommentAuthorRed
    • CommentTimeJul 4th, 2018 2:20pm (Jul 4th 2018)
     

    Keeper of the hens

    I thought you all needed to see this cuteness :tooth:
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      CommentAuthorchief chicken
    • CommentTimeJul 4th, 2018 2:43pm (Jul 4th 2018)
     
    Feel better soon, Red. At least the docs now take you seriously. I hope they're ashamed of their assumptions.
    • CommentAuthornanny north
    • CommentTimeJul 4th, 2018 7:58pm (Jul 4th 2018)
     
    awe such beautiful Kitties and they are so chilled out xx
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      CommentAuthorKateb
    • CommentTimeJul 4th, 2018 10:18pm (Jul 4th 2018)
     
    Gorgeous kitties!!

    Support groups are great and often have much better idea about a condition than the doctors. To be fair, for the lesser prolific conditions they might only ever see if once or twice (if that) in their career, and GPs have little time to research, but once something is diagnosed they should then be putting the effort in to support their patient. Sadly that often doesn't happen, but every now and then you do come across a good one!
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      CommentAuthorchief chicken
    • CommentTimeJul 5th, 2018 12:54pm (Jul 5th 2018)
     
    But if someone has a mental health issue, they shouldn't let that necessarily colour their subsequent diagnoses. It sounds as though they have automatically discounted concerns because of Red's preexisting condition. Until her latest GP that is, who sounds like a diamond!
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      CommentAuthorKateb
    • CommentTimeJul 5th, 2018 7:52pm (Jul 5th 2018)
     
    Yes CC you are of course right - my comments were more general, for instance the majority of GPs will never see a case of meningitis. My son was the only one his GP ever saw in his whole career. As a lot of contidions have quite non-specific symptoms they can miss things. That doesn't excuse them dismissing patients concerns and if they've done research and have a genuine reason to believe they are suffering from something the GP should take them seriously no matter what other illness they might have. I'm glad Red had the wherewithal to do her research and fight her case. There are a lot of good GPs who pick up on things and make good diagnoses - sadly the bad GPs are the ones that get talked about. Most GPs are poor with mental health because support services are bad so they don't know what to do with the patients.

    What is good is that Red has her wonderful partner and pets around her that are very good for her MH!
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      CommentAuthorchief chicken
    • CommentTimeJul 5th, 2018 8:06pm (Jul 5th 2018)
     
    Definitely; that Lyle's a diamond. Listen...you can hear him blushing from here... :rolling: We have a huge GP practice and so I rarely see the same doc twice. In the good old days you went in clutching a huge wodge of notes and they thought 'oh oh, problem!' but now they just see the last few consultations. Also the respiratory people see you as a pair of lungs, the diabetic lot as a pancreas... if the diabetic lot spoke to the respiratory lot they'd see that astronomic sugars don't mean that I have beating eating lard sarnies dipped in honey but that I HAVE been munching steroids. It would be good if GPs and patients could get to know eachother again. I've just read 'This Is Going To Hurt' by Adam Kay about the life of a junior doc. Hilarious and horrendous at the same time - everyone should read it. Ollie would love it, as he specialised in obstetrics.
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      CommentAuthorKateb
    • CommentTimeJul 6th, 2018 11:26pm (Jul 6th 2018)
     
    I agree 100%. I only said today that we should go back to a single handler GP working from the front room of his house like when I was a child. He would see you in the street and know who you were and what was wrong with you. We are seen as parts, not as a whole. In those days though your nan or the old lady next door would have a cure for things - a lotion for a rash, a tonic for a cold, or an old wive's tale that would work like rubbing a gold ring on a stye, some warm olive oil for earache, a comb for headlice! People went to the doctor when they were very ill - nowadays folk go for everything.